KFrances was created in honor of our daughter Kennedy Frances Ladd who was diagnosed with MPS1 (Hurler Syndrome) on March 30th, 2015. The mission of KFrances is to provide quality, comfortable and versatile clothing for young girls and use 10% or more of net profits to team with The Kennedy Ladd Foundation, Inc. to support research for and promote awareness of MPS1 (Hurler Syndrome).
We want KFrances to become a staple in every girl’s closet. We want to offer awesome customer service and essentials you want/need. Our pieces are versatile and can be paired with every outfit or worn alone. When you wear our pieces please tell a friend. Every new person brings awareness for MPS1 (Hurler Syndrome). Please feel free to send us your constructive criticism and praises. It takes a village and you are our village! We will only succeed with faithful patrons and we strive to make you happy.
MPS1 (Hurler Syndrome):
MPS1 (Hurler Syndrome) is a genetic disorder in which the body is missing an enzyme necessary to breakdown large molecules called glycosaminoglycans (GAG). As a result, the GAG molecules build up in the body and damage organs and tissues.
MPS1 (Hurler Syndrome) occurs on average in about 1 out of every 100,000 babies born. Children with Hurler syndrome have many physical and mental problems. If the damage is not stopped, children born with Hurler syndrome usually die by 5 to 10 years of age.
Through this journey we are blessed to have many people follow Kennedy’s progress, provide love and financial support, and show a genuine interest in helping to spread awareness for MPS1 (Hurler Syndrome). God and our supporters have given us the strength to be loud advocates for MPS1 (Hurler Syndrome)
Kennedy Frances Ladd’s journey:
Kennedy Frances Ladd was born on June 15th, 2014 in Knoxville, TN. She was pronounced a healthy baby girl and passed all of her newborn screenings. Kennedy grew and passed milestones. At 3 months, we noticed a “hump” on her back. The pediatrician told us not to worry, “her muscles haven’t fully developed.” We continued to press for answers and finally just short of 9 months old, Kennedy was sent to East Tennessee Children’s Hospital (ETCH) for an MRI and Ultrasound. The doctors at ETCH ruled out the mass was cancer. They told us the mass was a kyphosis and perhaps an indicator for MPS. The next week we were at Cincinnati Children’s Hospital for genetic testing and on March 30, 2015 it was confirmed Kennedy had MPS1 (Hurler Syndrome)
Successful bone marrow transplants or cord blood transplants in children with Hurler stop many of the devastating effects of Hurler. We are happy to say Kennedy Ladd received a successful Cord Blood Transplant from an unrelated donor on June 30, 2015!
The Kennedy Ladd Foundation, Inc.:
The Kennedy Ladd Foundation, Inc. hopes to raise awareness of MPS1 (Hurler Syndrome) by supporting research to cure MPS1 and other rare diseases. The Foundation also seeks to ease the burden on families of kids coming into transplant and/or receiving weekly enzyme replacement therapies by providing children with iPADS. Children going through transplants and/or weekly enzyme replacement therapies are required to be in small confined spaces for long periods of time. We found the iPAD to be a perfect distraction for Kennedy during these times.
**The Kennedy Ladd, Inc website is under construction but coming soon….
Please help us. There are so many way to help! You can by buy KFrances Clothing, donate to the Kennedy Ladd Foundation, Inc, tell all of your friends and family about Kennedy and help us raise awareness for MPS, you can sign up to be a donor on BeTheMatch.org., you can check out our events page, or just by simply visiting our page we have raised awareness by 1.
Kennedy's Parents, Ryan and Allie Ladd